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Cancer Treatments

Surgery and Rehabilitation to Treat Head and Neck Cancer

Argiris A, Karamouzis MV, Raben D, Ferris RL. Head and neck cancer. Lancet. 2008; 371:1695-1709.

Shah JP, Lydiatt W. Treatment of cancer of the head and neck. CA Cancer J Clin. 1995; 45:352-368.

Triana RJ Jr, Uglesic V, Virag M, et al. Microvascular free flap reconstructive options in patients with partial and total maxillectomy defects. Arch Facial Plast Surg. 2000; 2(2):91-101.

 

Radiation Therapy

Hu KS, Enker WE, Harrison LB. High-dose-rate intraoperative irradiation: current status and future directions. Seminars in Radiation Oncology. 2002;12(1):62-80.

Perry DJ, Chan K, Wolden S, Zelefsky MJ, Chiu J, Cohen G, Zaider M, Kraus D, Shah J, Lee, N. High-dose-rate intraoperative radiation therapy for recurrent head-and-neck cancer. International Journal of Radiation Oncology * Biology * Physics. 2010;76(4):1140-1146.

Chen AC, Bucci MK, Singer MI, Garcia J, Kaplan MJ, Chan AS, Phillips TL, Intraoperative radiation therapy for recurrent head and neck cancer: the UCSF experience. Int J Radiat Oncol Biol Phys; 2007; 67(1):122-129

 

Chemotherapy, Biologics, and Other Medications

Lefebvre JL, Pointreau Y, Rolland F, et al. Induction chemotherapy followed by either chemoradiotherapy or bioradiotherapy for larynx preservation: the TREMPLIN randomized phase II study. J Clin Oncol 2013;31:853-859.

Adelstein DJ, Moon J, Hanna E, et al. Docetaxel, cisplatin, and fluorouracil induction chemotherapy followed by accelerated fractionation/concomitant boost radiation and concurrent cisplatin in patients with advanced squamous cell head and neck cancer: A Southwest Oncology Group phase II trial (S0216). Head Neck. 2010;32:221-228.

Naronha V, Joshi A, Patil VM, et al. Once-a-week versus once-ever-3-weeks cisplatin chemoradiation for locally advanced head and neck cancer: a phase III randomized noninferiority trial. J Clin Oncol 2017;Jco2017749457.

Chen L, Hu CS, Chen XZ, et al. Concurrent chemoradiotherapy plus adjuvant chemotherapy versus concurrent chemoradiotherapy alone in patients with locoregionally advanced nasopharyngeal carcinoma: a phase 3 multicentre randomised controlled trial. Lancet Oncol 2012;13:163-171.

Vermorken JB, Mesia R, Rivera F, et al. Platinum-based chemotherapy plus cetuximab in head and neck cancer. N Engl J Med 2008;359:1116-1127.

Jacobs C, Lyman G, Velez-Garcia E, et al. A phase III randomized study comparing cisplatin and fluorouracil as single agents and in combination for advanced squamous cell carcinoma of the head and neck. J Clin COncol 1992;10:257-263.

Stewart JS, Cohen EE, Licitra L, et al. Phase III study of gefitinib compared with intravenous methotrexate for recurrent squamous cell carcinoma of the head and neck. J Clin Oncol 2009;27:1864-1871.

Zhang L, Zhang Y, Huang PY, et al. Phase II clinical study of gemcitabine in the treatment of patients with advanced nasopharyngeal carcinoma fater the failure of platinum-based chemotherapy. Cancer Chemother Pharmacol 2008;61:33-38.

 

Getting Prepared

Chen H-C, Evans KFK, Salgado CJ, Mardini S. Methods of voice reconstruction. Seminars in Plastic Surgery. 2010:227-232.

Gaziano JE. Evaluation and management of oropharyngeal Dysphagia in head and neck cancer. Cancer Control. 2002 Sep-Oct;9(5):400-9.

Doyle C, Kushi LH,Byers T, et al.2006 Nutrition, Physical Activity and Cancer Survivorship Advisory Committee; American Cancer Society.Nutrition and physical activity during and after cancer treatment: an American Cancer Society guide for informed choices. CA Cancer J Clin.2006;56:323-353.

Argiris A, Karamouzis MV, Raben D, Ferris RL. Head and neck cancer. Lancet. 2008; 371:1695-1709.

Horiot JC, Schraub S, Bone MC, Bet al. Dental preservation in patients irradiated for head and neck tumours: A 10-year experience with topical fluoride and a randomized trial between two fluoridation methods. Radiother Oncol. 1983 Aug;1(1):77-82.

Shah JP, Lydiatt W. Treatment of cancer of the head and neck. CA Cancer J Clin. 1995; 45: 352-368.

Zlotolow IM. Clinical manifestations of head and neck irradiation. Compend Contin Educ Dent. 1997;18(2 Spec No):51-6.

Katz MR, Kopek N, Waldron J, Devins GM, Tomlinson G. Screening for depression in head and neck cancer. Psycho-Oncology. 2004 Apr;13(4):269-80.

Terrell JE, Fisher SG, Wolf GT. Long-term quality of life after treatment of laryngeal cancer. The Veterans Affairs Laryngeal Cancer Study Group. Arch Otolaryngol Head Neck Surg. 1998 Sep;124(9):964-71.

Ziebland S, Chapple A, Dumelow C, Evans J, Prinjha S, Rozmovits L. How the internet affects patients’ experience of cancer: a qualitative study. BMJ. 2004 Mar 6;328(7439):564.

Meier A, Lyons EJ, Frydman G, Forlenza M, Rimer BK. How cancer survivors provide support on cancer-related Internet mailing lists. J Med Internet Res. 2007 May 14;9(2):e12.

National Cancer Institute (NCI) Website. Accessed at http://www.cancer.gov/ on February 19, 2013.

 

Learning About Your Diagnosis

Shah JP, Lydiatt W. Treatment of cancer of the head and neck. CA Cancer J Clin. 1995;45:352-368.

Edge SB, et al. The AJCC Cancer Staging Manual – Seventh Edition. American Joint Committee on Cancer 2010. Page 611.

Marur S, Forastiere AA. Head and neck cancer: changing epidemiology, diagnosis, and treatment. Mayo Clin Proc. 2008 Apr;83(4):489-501.

Surveillance Epidemiology and End Results (SEER) Website. Accessed at seer.cancer.gov on February 17, 2013.

Howlader N, Noone AM, Krapcho M, et al. SEER Cancer Statistics Review, 1975-2009 (Vintage 2009 Populations). National Cancer Institute. Bethesda, MD.Accessed at http://seer.cancer.gov/csr/1975_2009_pops09/, based on November 2011 SEER data submission, posted to the SEER web site, 2012.

Hillner BE, Smith TJ, Desch CE. Hospital and physician volume or specialization and outcomes in cancer treatment: importance in quality of cancer care. J Clin Oncol. 2000 Jun;18(11):2327-40.

 

Choosing a Care Team

Gaziano JE. Evaluation and management of oropharyngeal Dysphagia in head and neck cancer. Cancer Control. 2002 Sep-Oct;9(5):400-9.

Chen H-C, Evans KFK, Salgado CJ, Mardini S. Methods of voice reconstruction. Seminars in Plastic Surgery. 2010:227-232.

National Cancer Institute Website. Accessed at http://www.cancer.gov/dictionary on February 18, 2013.

Marur S, Forastiere AA. Head and neck cancer: changing epidemiology, diagnosis, and treatment. Mayo Clin Proc. 2008 Apr;83(4):489-501.

Ko CY, Chang JT, Chaudhry S, Kominski G. Are high-volume surgeons and hospitals the most important predictors of in-hospital outcome for colon cancer resection? Surgery. 2002 Aug;132(2):268-73.

Karanicolas PJ, Dubois L, Colquhoun PH, Swallow CJ, Walter SD, Guyatt GH. The more the better?: the impact of surgeon and hospital volume on in-hospital mortality following colorectal resection. Ann Surg. 2009 Jun;249(6):954-9.Billingsley KG, Morris AM, Dominitz JA, et al. Surgeon and hospital characteristics as predictors of major adverse outcomes following colon cancer surgery: understanding the volume-outcome relationship. Arch Surg. 2007 Jan;142(1):23-31; discussion 32.

Hillner BE, Smith TJ, Desch CE. Hospital and physician volume or specialization and outcomes in cancer treatment: importance in quality of cancer care. J Clin Oncol. 2000 Jun;18(11):2327-40.

Friese CR, Earle CC, Silber JH, Aiken LH. Hospital characteristics, clinical severity, and outcomes for surgical oncology patients. Surgery. 2010 May;147(5):602-9.

National Cancer Institute Website. Accessed at http://www.cancer.gov/dictionary on February 18, 2013.

Hoffman B. Cancer survivors at work: a generation of progress. CA Cancer J Clin. 2005 Sep-Oct;55(5):271-80.

 

Understanding Your Treatment Plan

Shah JP, Lydiatt W. Treatment of cancer of the head and neck. CA Cancer J Clin. 1995;45:352-368.

Yu P. Characteristics of the anterolateral thigh flap in a Western population and its application in head and neck reconstruction. Head Neck. 2004 Sep;26(9):759-69.

Gaziano JE. Evaluation and management of oropharyngeal dysphagia in head and neck cancer. Cancer Control. 2002 Sep-Oct;9(5):400-9.

Lichter AS, Lawrence TS. Recent advances in radiation oncology. N Engl J Med. 1995;332(6):371-9.

Vissink A, Burlage FR, Spjkervet FKL, Jansma J, Coppes RP. Prevention and treatment of the consequences of head and neck radiotherapy. Crit Rev Oral Biol Med. 2003;14(3):213-225.

Argiris A, Karamouzis MV, Raben D, Ferris RL. Head and neck cancer. Lancet. 2008;371:1695-1709.

Forastiere A, Koch W, Trotti A, Sidransky D. Head and Neck Cancer. N Engl J Med. 2001;345(26):1890-1900.

Smets EM, Garssen B, Schuster-Uitterhoeve AL, de Haes JC. Fatigue in cancer patients. Br J Cancer. 1993 Aug;68(2):220-4.

Vogelzang NJ, Breitbart W, Cella D, et al. Patient, caregiver, and oncologist perceptions of cancer-related fatigue: results of a tripart assessment survey. The Fatigue Coalition. Semin Hematol. 1997 Jul;34(3 Suppl 2):4-12.

Henry DH, Viswanathan HN, Elkin EP, Traina S, Wade S, Cella D. Symptoms and treatment burden associated with cancer treatment: results from a cross-sectional national survey in the U.S. Support Care Cancer. 2008 Jul;16(7):791-801.

Hofman M, Ryan JL, Figueroa-Moseley CD, Jean-Pierre P, Morrow GR. Cancer-related fatigue: the scale of the problem. Oncologist. 2007;12 Suppl 1:4-10.

Wendt TG, Grabenbauer GG, Rödel CM, et al. Simultaneous radiochemotherapy versus radiotherapy alone in advanced head and neck cancer: a randomized multicenter study. J Clin Oncol. 1998 Apr;16(4):1318-24.

Doyle C,Kushi LH,Byers T, et al.2006 Nutrition, Physical Activity and Cancer Survivorship Advisory Committee; American Cancer Society.Nutrition and physical activity during and after cancer treatment: an American Cancer Society guide for informed choices. CA Cancer J Clin.2006;56:323-353.

Horiot JC, Schraub S, Bone MC, et al. Dental preservation in patients irradiated for head and neck tumours: A 10-year experience with topical fluoride and a randomized trial between two fluoridation methods. Radiother Oncol. 1983 Aug;1(1):77-82.

Zlotolow IM. Clinical manifestations of head and neck irradiation. Compend Contin Educ Dent. 1997;18(2 Spec No):51-6.

Dimeo F, Rumberger BG, Keul J. Aerobic exercise as therapy for cancer fatigue. Med Sci Sports Exerc. 1998 Apr;30(4):475-8.

Dimeo F, Schwartz S, Wesel N, Voigt A, Theil E. Effects of an endurance and resistance exercise program on persistent cancer-related fatigue after treatment. Ann Oncol. 2008;19(8):1495-1499.

Curt GA. Like pain, this is a symptom that physicians can and should manage. BMJ. 2001;322:1560.

Rock CL, Doyle C, Demark-Wahnefried W, et al. Nutrition and physical activity guidelines for cancer survivors. CA Cancer J Clin. 2012 Jul-Aug;62(4):243-74.

Terrell JE, Fisher SG, Wolf GT. Long-term quality of life after treatment of laryngeal cancer. The Veterans Affairs Laryngeal Cancer Study Group. Arch Otolaryngol Head Neck Surg. 1998 Sep;124(9):964-71.

Ashbury FD, Cameron C, Mercer SL, Fitch M, Nielsen E. One-on-one peer support and quality of life for breast cancer patients. Patient Educ Couns. 1998 Oct;35(2):89-100.

 

Life During Treatment

Curt GA. Like pain, this is a symptom that physicians can and should manage. BMJ. 2001;322:1560.

Pearson SE, Meyer AC, Adams GL, Ondrey FG. Decreased hearing after combined modality therapy for head and neck cancer. Am J Otolaryngol. 2006 Mar-Apr;27(2):76-80.

Smets EM, Garssen B, Schuster-Uitterhoeve AL, de Haes JC. Fatigue in cancer patients. Br J Cancer. 1993 Aug;68(2):220-4.

Vogelzang NJ, Breitbart W, Cella D, et al. Patient, caregiver, and oncologist perceptions of cancer-related fatigue: results of a tripart assessment survey. The Fatigue Coalition. Semin Hematol. 1997 Jul;34(3 Suppl 2):4-12.

Henry DH, Viswanathan HN, Elkin EP, Traina S, Wade S, Cella D. Symptoms and treatment burden associated with cancer treatment: results from a cross-sectional national survey in the U.S. Support Care Cancer. 2008 Jul;16(7):791-801.

Hofman M, Ryan JL, Figueroa-Moseley CD, Jean-Pierre P, Morrow GR. Cancer-related fatigue: the scale of the problem. Oncologist. 2007;12 Suppl 1:4-10.

Rogers LQ, Courneya KS, Robbins KT, et al. Physical activity and quality of life in head and neck cancer survivors. Support Care Cancer. 2006 Oct;14(10):1012-9.

Dimeo F, Rumberger BG, Keul J. Aerobic exercise as therapy for cancer fatigue. Med Sci Sports Exerc. 1998 Apr;30(4):475-8.

Dimeo F, Schwartz S, Wesel N, Voigt A, Theil E. Effects of an endurance and resistance exercise program on persistent cancer-related fatigue after treatment. Ann Oncol. 2008;19(8):1495-1499.

Curt GA. Like pain, this is a symptom that physicians can and should manage. BMJ. 2001;322:1560.

Rock CL, Doyle C, Demark-Wahnefried W, et al. Nutrition and physical activity guidelines for cancer survivors. CA Cancer J Clin. 2012 Jul-Aug;62(4):243-74.

Minton O, Richardson A, Sharpe M, Hotopf M, Stone P. A systematic review and meta-analysis of the pharmacological treatment of cancer-related fatigue. J Natl Cancer Inst. 2008 Aug 20;100(16):1155-66.

Doyle C,Kushi LH,Byers T, et al.2006 Nutrition, Physical Activity and Cancer Survivorship Advisory Committee; American Cancer Society.Nutrition and physical activity during and after cancer treatment: an American Cancer Society guide for informed choices. CA Cancer J Clin.2006;56:323-353.

Ogama N, Suzuki S. Adverse effects and appetite suppression associated with particle beam therapy in patients with head and neck cancer. Jpn J Nurs Sci. 2012 Jun;9(1):28-37.

Hoffman B. Cancer survivors at work: a generation of progress. CA Cancer J Clin. 2005 Sep-Oct;55(5):271-80.

Blank PD. The economics of the employment provisions of The Americans with Disabilities Act: Part I – workplace accommodations. DePaul Law Rev. 1997;46(4):877-914.

Logemann JA, Pauloski BR, Rademaker AW, Colangelo LA. Speech and swallowing rehabilitation for head and neck cancer patients. Oncology-Huntington. 1997 May 1;11(5):651-8.

Morrow GR, Gillies LJ, Hickok JT, et al. The positive effect of the psychostimulant modafinil on fatigue from cancer that persists after treatment is completed [abstract]. J Clin Oncol 2005;23(Suppl 16):8012.

 

Life After Treatment

Logemann JA, Pauloski BR, Rademaker AW, et al. Swallowing disorders in the first year after radiation and chemoradiation. Head Neck. 2008 Feb;30(2):148-58.

Pauloski BR. Rehabilitation of dysphagia following head and neck cancer. Phys Med Rehabil Clin N Am. 2008 Nov;19(4):889-928.

Argiris A, Karamouzis MV, Raben D, Ferris RL. Head and neck cancer. Lancet. 2008;371:1695-1709.

Epstein JB, Emerton S, Kolbinson DA, et al. Quality of life and oral function following radiotherapy for head and neck cancer. Head Neck. 1999 Jan;21(1):1-11.

Gritz ER, Carmack CL, de Moor C, et al. First year after head and neck cancer: quality of life. J Clin Oncol.1999 Jan;17(1):352-60.

Gaziano JE. Evaluation and management of oropharyngeal dysphagia in head and neck cancer. Cancer Control. 2002 Sep-Oct;9(5):400-9.

Chen HC, Evans KFK, Salgado CJ, Mardini S. Methods of voice reconstruction. Seminars in Plastic Surgery. 2010;227-232.

Shah JP, Lydiatt W. Treatment of cancer of the head and neck. CA Cancer J Clin. 1995;45:352-368.

Katz MR, Kopek N, Waldron J, Devins GM, Tomlinson G. Screening for depression in head and neck cancer. Psycho Oncology. 2004 Apr;13(4):269-80.

Terrell JE, Fisher SG, Wolf GT. Long-term quality of life after treatment of laryngeal cancer. The Veterans Affairs Laryngeal Cancer Study Group. Arch Otolaryngol Head Neck Surg. 1998 Sep;124(9):964-71.

Semple CJ, Dunwoody L, Sullivan K, Kernohan WG. Patients with head and neck cancer prefer individualized cognitive behavioural therapy. Eur J Cancer Care (Engl). 2006 Jul;15(3):220-7.

Alexander MV, Zajtchuk JT, Henderson RL. Hypothyroidism and wound healing: occurrence after head and neck radiation and surgery. Arch Otolaryngol. 1982 May;108(5):289-91.

American Cancer Society (ACS). Cancer Facts and figures 2012. Atlanta, GA: American Cancer Society, Inc. 2012.

 

Navigating Your Finances

Chaturvedi SK, Shenoy A, Prasad KM, Senthilnathan SM, Premlatha BS. Concerns, coping and quality of life in head and neck cancer patients. Support Care Cancer. 1996 May;4(3):186-90.

Ward E, Halpern M, Schrag N, et al. Association of insurance with cancer care utilization and outcomes. CA Cancer J Clin. 2008 Jan-Feb;58(1):9-31.

National Cancer Institute Website. Accessed at http://www.cancer.gov/ on February 19, 2013.

Benefits.gov website. Accessed at http://www.benefits.gov/benefits/browse-by-category/category/MED on February 19, 2013.

Your Caregiver Network

Vogelzang NJ, Breitbart W, Cella D, et al. Patient, caregiver, and oncologist perceptions of cancer-related fatigue: results of a tripart assessment survey. The Fatigue Coalition. Semin Hematol. 1997 Jul;34(3 Suppl 2):4-12.

Henry DH, Viswanathan HN, Elkin EP, Traina S, Wade S, Cella D. Symptoms and treatment burden associated with cancer treatment: results from a cross-sectional national survey in the U.S. Support Care Cancer. 2008 Jul;16(7):791-801.

Gaziano JE. Evaluation and management of oropharyngeal Dysphagia in head and neck cancer. Cancer Control. 2002 Sep-Oct;9(5):400-9.

American Cancer Society (ACS). Cancer facts and figures 2012. Atlanta, GA: American Cancer Society, Inc. 2012.

Breitbart W, Holland J. Psychosocial aspects of head and neck cancer. Semin Oncol. 1988 Feb;15(1):61-9.

Kugaya A, Akechi T, Okuyama T, et al. Prevalence, predictive factors, and screening for psychologic distress in patients with newly diagnosed head and neck cancer. Cancer. 2000 Jun 15;88(12):2817-23.

Bjordal K, Kaasa S. Psychological distress in head and neck cancer patients 7-11 years after curative treatment. Br J Cancer. 1995 Mar;71(3):592-7.

Meier A, Lyons EJ, Frydman G, Forlenza M, Rimer BK. How cancer survivors provide support on cancer-related Internet mailing lists. J Med Internet Res. 2007 May 14;9(2):e12.

Ashbury FD, Cameron C, Mercer SL, Fitch M, Nielsen E. One-on-one peer support and quality of life for breast cancer patients. Patient Educ Couns. 1998 Oct;35(2):89-100.

Ziebland S, Chapple A, Dumelow C, Evans J, Prinjha S, Rozmovits L. How the internet affects patients’ experience of cancer: a qualitative study. BMJ. 2004 Mar 6;328(7439):564.

Semple CJ, Dunwoody L, Sullivan K, Kernohan WG. Patients with head and neck cancer prefer individualized cognitive behavioural therapy. Eur J Cancer Care (Engl). 2006 Jul;15(3):220-7.

 

The Path to Remission

National Cancer Institute (NCI) Website. Accessed at http://www.cancer.gov/ on February 19, 2013.

Argiris A, Karamouzis MV, Raben D, Ferris RL. Head and neck cancer. Lancet. 2008;371:1695-1709.

Macdonald N, Shapiro A, Bender C, Paolantonio M, Coombs J. Experiences and perspectives on the GIST patient journey. Patient Prefer Adherence. 2012;6:253-62.

Alexander MV, Zajtchuk JT, Henderson RL. Hypothyroidism and wound healing: occurrence after head and neck radiation and surgery. Arch Otolaryngol. 1982 May;108(5):289-91.

 

Life After Cancer

Terrell JE, Fisher SG, Wolf GT. Long-term quality of life after treatment of laryngeal cancer. The Veterans Affairs Laryngeal Cancer Study Group. Arch Otolaryngol Head Neck Surg. 1998 Sep;124(9):964-71.

Meier A, Lyons EJ, Frydman G, Forlenza M, Rimer BK. How cancer survivors provide support on cancer-related Internet mailing lists. J Med Internet Res. 2007 May 14;9(2):e12.

Ziebland S, Chapple A, Dumelow C, Evans J, Prinjha S, Rozmovits L. How the internet affects patients’ experience of cancer: a qualitative study. BMJ. 2004 Mar 6;328(7439):564.

 

End-of-Life Choices

Howlader N, Noone AM, Krapcho M, et al. SEER Cancer Statistics Review, 1975-2009 (Vintage 2009 Populations). National Cancer Institute. Bethesda, MD. Accessed at http://seer.cancer.gov/csr/1975_2009_pops09/, based on November 2011 SEER data submission, posted to the SEER web site, 2012.

Lockhart LK, Ditto PH, Danks JH, Coppola KM, Smucker WD. The stability of older adults’ judgments of fates better and worse than death. Death Stud. 2001 Jun;25(4):299-317.

Ditto PH, Jacobson JA, Smucker WD, Danks JH, Fagerlin A. Context changes choices: a prospective study of the effects of hospitalization on life-sustaining treatment preferences. Med Decis Making. 2006 Jul-Aug;26(4):313-22.

Messinger-Rapport BJ, Baum EE, Smith ML. Advance care planning: Beyond the living will. Cleve Clin J Med. 2009 May;76(5):276-85.

Bomba PA, Kemp M, Black JS. POLST: An improvement over traditional advance directives. Cleve Clin J Med. 2012 Jul;79(7):457-64.

Earle CC, Park ER, Lai B, Weeks JC, Ayanian JZ, Block S. Identifying potential indicators of the quality of end-of-life cancer care from administrative data. J Clin Oncol. 2003 Mar 15;21(6):1133-8.

Torpy JM, Burke A, Golub RM. Hospice care. JAMA. 2012 Jul 11;308(2):200.

Current Clinical Issues: The debate in hospice care. JOP. 2008;4(3):153-157.

Levy MH, Adolph MD, Back A, et al. Palliative care. J Natl Compr Canc Netw. 2012;10:1284-1309.

 

The Emotional Journey

Cardenal V, Cerezo MV, Martinez J, et al. Personality,emotionsand coping styles: predictive value for the evolution ofcancer patients. Span J Psychol. 2012 Jul;15(2):756-767.

Rosenberger C, Hocker A, Cartus M, et al. Outpatient psycho-oncological care for family members and patients: access, psychological distress and supportive care needs. Psychother Psychosom Med Psychol.2012 May;62(5):185-194. Epub 2012 May 7.

Mystakidou K, Parpa E, Tsilika E, et al. Posttraumatic stress disorder and preparatory grief in advanced cancer. J BUON.2012 Jan-Mar;17(1):155-159.

 

The Patient’s Emotional Journey

Cardenal V, Cerezo MV, Martinez J, et al. Personality, emotions and coping styles: predictive value for the evolution ofcancer patients. Span J Psychol. 2012 Jul;15(2):756-767.

Galway K, Black A, Cantwell M, et al. Psychosocial interventions to improve quality of life and emotional wellbeing for recently diagnosedcancerpatients. Cochrane Database Syst Rev.2012 Nov 14;11:CD007064.

Powell ND, Tarr AJ, Sheridan JF. Psychosocialstressand inflammation incancer. Brain Behav Immun.2012 Jul 9.

Richardson P. Assessment and implementation of spirituality and religiosity incancercare:effectson patient outcomes. Clin J Oncol Nurs.2012 Aug 1;16(4):E150-5.

Kangas M,Milross C,Taylor A,Bryant RA. A pilot randomized controlled trial of a brief early intervention for reducing posttraumatic stress disorder, anxiety and depressive symptoms in newly diagnosed head and neck cancer patients. Psycho-Oncology.2012 Oct 8.

Depression (PDQ): Health professional version. National Cancer Institute – PDQ Cancer Information Summaries. http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0032529/.

Brocken P, Prins JB, Dekhuijzen PN, van der Heijden HF. The faster the better?—A systematic review on distress in the diagnostic phase of suspected cancer, and the influence of rapid diagnostic pathways. Psycho-Oncology. 2012 Jan;21(1):1-10.

Smoking in cancer care (PDQ): Health professional version. National Cancer Institute – PDQ Cancer Information Summaries. http://www.cancer.gov/cancertopics/pdq/supportivecare/smokingcessation/HealthProfessional/page2.

Hashibe M, Brennan P, Chuang SC, et al. Interaction between tobacco and alcohol use and the risk of head and neck cancer: pooled analysis in the International Head and Neck Cancer

Epidemiology Consortium. Cancer Epidemiol Biomarkers Prev. 2009 Feb;18(2):541-50.

Scharloo M, Baatenburg de Jong RJ, Langeveld TP, van Velzen-Verkaik E, Doorn-op den Akker MM, Kaptein AA. Quality of life and illness perceptions in patients with recently diagnosed head and neck cancer. Head Neck. 2005 Oct;27(10):857-863.

Lebel S, Castonguay M, Mackness G, Irish J, Bezjak A, Devins GM. The psychosocial impact of stigma in people with head and neck or lung cancer. Psycho-Oncology. 2011 Sep 19.

Daley EM, Perrin KM, McDermott RJ, Vamos CA, Rayko HL, Packing-Ebuen JL, Webb C, McFarlane M. The psychosocial burden of HPV: a mixed-method study of knowledge, attitudes and behaviors among HPV+ women. J Health Psychol. 2010 Mar;15(2):279-290.

Genital HPV infection: fact sheet. Centers for Disease Control and Prevention. http://www.cdc.gov/std/HPV/STDFact-HPV.htm#cause. 2012 Aug.

Genital warts. A.D.A.M. Medical Encyclopedia. http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001889/.

Baxi SS, Shuman AG, Corner GW, Shuk E, Sherman EJ, Elkin EB, Hay JL, Pfister DG. Sharing a diagnosis of HPV-related head and neck cancer: The emotions, the confusion, and what patients want to know. Head Neck. 2012 Nov 20.

HPV and men: fact sheet. Centers for Disease Control and Prevention. http://www.cdc.gov/std/hpv/stdfact-hpv-and-men.htm. 2011 Dec.

Generalized anxiety disorder. A.D.A.M. Medical Encyclopedia. http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001915/.

Post-traumatic stress disorder (PDQ): Health professional version. National Cancer Institute – PDQ Cancer Information Summaries. 2012 June 15. http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0032585/.

Coping with a traumatic event. CDC. http://www.cdc.gov/masstrauma/factsheets/public/coping.pdf.

O’Connor E, Whitlock E, Gaynes B, et al. Screening for depression in adults and older adults in primary care. Agency for Healthcare Research and Quality. December 2009.

Major depressive disorder among adults. National Institute of Mental Health. http://www.nimh.nih.gov/statistics/1mdd_adult.shtml.

American Psychiatric Association. Quick Reference to the Diagnostic Criteria from DSM-IV.Washington, DC. American Psychiatric Press, Inc. 1994.

What are the signs and symptoms of depression? National Institute of Mental Health. http://www.nimh.nih.gov/health/publications/depression/what-are-the-signs-and-symptoms-of-depression.shtml.

Llewellyn CD, Horney DJ, McGurk M, Weinman J, Herold J, Altman K, Smith HE. Assessing the psychological predictors of benefit finding in patients with head and neck cancer. Psycho-Oncology. 2011 Sep 14.

Rosenberger C, Hocker A, Cartus M, et al. Outpatient psycho-oncological care for family members and patients: access, psychological distress and supportive care needs. Psychother Psychosom Med Psychol.2012 May;62(5):185-194. Epub 2012 May 7.

Luckett T, Britton B, Clover K, Rankin NM. Evidence for interventions to improve psychological outcomes in people with head and neck cancer: a systematic review of the literature. Supportive Care in Cancer.2011;19(7):871-881.

Kroenke CH,Quesenberry C,Kwan ML, et al. Social networks, social support, and burden in relationships, and mortality after breast cancer diagnosis in the Life After Breast Cancer Epidemiology (LACE) Study. BreastCancerRes Treat.2012 Nov 10.

Kangas M, Milross C, Taylor A, Bryant RA. A pilot randomized controlled trial of a brief early intervention for reducing posttraumatic stress disorder, anxiety and depressive symptoms in newly diagnosed head and neck cancer patients. Psycho-Oncology. 2012 Oct 8.

Bast RC Jr, Kufe DW, Pollock RE, et al., editors. Principles of psycho-oncology. Cancer Medicine, 6 ed. Hamilton (ON):BC Decker; 2000.

Dance/movement therapy for cancer patients. Cochrane Database of Systematic Reviews: Plain Language Summaries. 2011 Oct 5. http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0016207/.

Nekolaichuk CL, Cumming C, Turner J, Yushchyshyn A, Sela R. Referral patterns and psychosocial distress in cancer patients accessing a psycho-oncology counseling service. Psycho-Oncology. 2011 Mar;20(3):326-332.

Manne S and Badr H. Intimacy processes and psychological distress among couples coping with head and neck or lung cancers. Psycho-Oncology.2010 September;19(9):941-954.

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Silagy C, Lancaster T, Stead L, et al. Nicotine replacement therapy for smoking cessation. Cochrane Database Syst Rev. (3): CD000146, 2004.

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Self-help strategies for quitting drinking. Rethinking Drinking: Alcohol and Your Health. National Institute on Alcohol Abuse and Alcoholism. http://rethinkingdrinking.niaaa.nih.gov/default.asp.

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Humphris GM, Rogers S, McNally D, Lee-Jones C, Brown J, Vaughan D. Fear of recurrence and possible cases of anxiety and depression in orofacial cancer patients. Int J Oral Maxillofac Surg. 2003 Oct;32(5):486-491.

Crist JV, Grunfeld EA. Factors reported to influence fear of recurrence in cancer patients: a systematic review. Psycho-Oncology. 2012 Jun 3. doi: 10.1002/pon.3114.

Feiler B. Scanxiety. Fear of a postcancer ritual. Time. 2011 Jun 13;177(24):56.

Israel O, Kuten A. Early detection of cancer recurrence: 18F-FDG PET/CT can make a difference in diagnosis and patient care. J Nucl Med. 2007 Jan;48 Suppl 1:28S-35S.

Kiesler DJ, Auerbach SM. Optimal matches of patient preferences for information, decision-making and interpersonal behaviour: evidence, models and interventions.Patient Educ Couns.2006;61:319-341.

Elwyn G, Hutchings H, Edwards A, et al. TheOPTIONscale: measuring the extent that clinicians involve patients in decision-making tasks.Health Expect.2005;8:34-42.

Stacey D, Paquet L and Samant R. Exploring cancer treatment decision-making by patients: a descriptive study. Curr Oncol.2010 August;17(4):85-93.

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Gattellari M, Butow PN, Tattersall MHN. Sharing decisions in cancer care.Soc Sci Med. 2001;52:1865-1878.

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de Haes H, Koedoot N. Patient centered decision making in palliative cancer treatment: a world of paradoxes. Patient Educ Couns. 2003 May;50(1):43-49.

Wright AA, Zhang B, Ray A, et al. Associations between end-of-life discussions, patient mental health, medical care near death, and caregiver bereavement adjustment. JAMA 300. 2008;(14):1665-1673.

Seow H, Barbera L, Sutradhar R, et al. Trajectory of performance status and symptom scores for patients with cancer during the last six months of life. J Clin Oncol. 2011;29(9):1151-1158.

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The Caregiver’s Emotional Journey

Vanderwalker LC, Laff RE, Kadan-Lottick NS, et al. Psychiatric disorders and mental health service use among caregivers of advanced cancer patients. J Clin Oncol.2005 October 1;23(28):6899-6907.

Longacre ML, Ridge JA, Burtness BA, Galloway TJ, Fang CY. Psychological functioning of caregivers for head and neck cancer patients. Oral Oncol. 2012 Jan;48(1):18-25.

Rosenberger C, Hocker A, Cartus M, et al. Outpatient psycho-oncological care for family members and patients: access, psychological distress and supportive care needs. Psychother Psychosom Med Psychol.2012 May;62(5):185-194. Epub 2012 May 7.

Ross S, Mosher CE, Ronis-Tobin V, Hermele S, Ostroff JS. Psychosocial adjustment of family caregivers of head and neck cancer survivors. Support Care Cancer. 2010 Feb;18(2):171-178.

Depression (PDQ): Health professional version. National Cancer Institute – PDQ Cancer Information Summaries. http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0032529/.

Manne S and Badr H. Intimacy processes and psychological distress among couples coping with head and neck or lung cancers. Psycho-Oncology.2010 September;19(9):941-954.

Longacre ML, Ridge JA, Burtness BA, Galloway TJ, Fang CY. Psychological functioning of caregivers for head and neck cancer patients. Oral Oncol. 2012 Jan;48(1):18-25.

Family matters. Taking Time: Support for People with Cancer. National Cancer Institute. http://www.cancer.gov/cancertopics/takingtime/page3.

Hodges LJ, Humphris GM, Macfarlane G: A meta-analytic investigation of the relationship between the psychological distress of cancer patients and their carers. Soc Sci Med. 2005;60(1):1-12.

Kroenke CH,Quesenberry C,Kwan ML, et al. Social networks, social support, and burden in relationships, and mortality after breast cancerdiagnosis in the Life After BreastCancerEpidemiology (LACE) Study. BreastCancerRes Treat.2012 Nov 10.

Vanderwalker LC, Laff RE, Kadan-Lottick NS, et al. Psychiatric disorders and mental health service use among caregivers of advanced cancer patients. J Clin Oncol.2005 October 1;23(28):6899-6907.

Low C, Fullarton M, Parkinson E, O’Brien K, Jackson SR, Lowe D, Rogers SN. Issues of intimacy and sexual dysfunction following major head and neck cancer treatment. Oral Oncol. 2009 Oct;45(10):898-903.

Surviving Cancer: Effects on intimacy. NIH Senior Health. http://nihseniorhealth.gov/lifeaftercancer/effectsonintimacy/01.html.

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People helping people. Taking Time: Support for People with Cancer. National Cancer Institute. http://www.cancer.gov/cancertopics/takingtime/page6#8.

Impacts of caregiving on the caregiver’s quality of life. Family Caregivers in Cancer: Roles and Challenges (PDQ). National Cancer Institute. http://www.cancer.gov/cancertopics/pdq/supportivecare/caregivers/healthprofessional/page5.

Adjustment to cancer: anxiety and distress. National Cancer Institute – PDQ Cancer Information Summaries, Health Professional Version. http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0032514/.

Mellon S, Northouse LL, Weiss LK. A population-based study of the quality of life of cancer survivors and their family caregivers. Cancer Nurs. 2006 Mar-Apr;29(2):120-131;quiz 132-133.

Crist JV, Grunfeld EA. Factors reported to influence fear of recurrence in cancer patients: a systematic review. Psycho-Oncology. 2012 Jun 3. doi: 10.1002/pon.3114.

Feiler B. Scanxiety. Fear of a postcancer ritual. Time. 2011 Jun 13;177(24):56.

Weitzner MA, McMillan SC, Jacobsen PB. Family caregiver quality of life: differences between curative and palliative cancer treatment settings. J Pain Symptom Manage. 1999;17(6):418-428.

Cameron JI, Franche RL, Cheung AM, et al. Lifestyle interference and emotional distress in family caregivers of advanced cancer patients. Cancer. 2002;94(2):521-527.

Morrison RS, Meier DE. Clinical practice. Palliative care. N Engl J Med. 2004;350(25):2582-2590.

 

Living with Disfigurement

Callahan C. Facial disfigurement and sense of self in head and neck cancer. Soc Work Health Care. 2004;40(2):73-87.

Hagedoorn M, Molleman E. Facial disfigurement in patients with head and neck cancer: the role of social self-efficacy. Health Psychol. 2006 Sep;25(5):643-647.

Baker CA. Factors associated with rehabilitation in head and neck cancer. Cancer Nurs. 1992 Dec;15(6):395-400.

Arunachalam D, Thirumoorthy A, Devi S and Thennarasu. Quality of life in cancer patients with disfigurement due to cancer and its treatments. Indian J Palliat Care.2011 Sep-Dec;17(3):184-190.

Deno M, Tashiro M, Miyashita M, Asakage T, Takahashi K, Saito K, Busujima Y, Mori Y, Saito H, Ichikawa Y. The mediating effects of social support and self-efficacy on the relationship between social distress and emotional distress in head and neck cancer outpatients with facial disfigurement. Psycho-Oncology. 2010 Dec 20.

Lebel S, Castonguay M, Mackness G, Irish J, Bezjak A, Devins GM. The psychosocial impact of stigma in people with head and neck or lung cancer. Psycho-Oncology. 2011 Sep 19.

Strauss RP. Psychosocial response to oral and maxillofacial surgery for head and neck cancer. Journal of Oral and Maxillofacial Surgery.1989;47:343-348.

Fingeret MC, Vidrine DJ, Reece GP, et al. A multidimensional analysis of body image concerns among newly diagnosed patients with oral cavity cancer. Head Neck.2010 March;32(3):301-309.

Katz MR, Irish JC, Devins GM, Rodin GM, Gullane PJ. Reliability and validity of an observer-rated disfigurement scale for head and neck cancer patients. Head Neck. 2000 Mar;22(2):132-141.

Millsopp L, Brandom L, Humphris G, Lowe D, Stat C, Rogers S. Facial appearance after operations for oral and oropharyngeal cancer: a comparison of casenotes and patient-completed questionnaire.Br J Oral Maxillofac Surg.2006;44(5):358-363.

Rumsey N, Clarke A, White P, Wyn-Williams M, Garlick W. Altered body image: appearance-related concerns of people with visible disfigurement.J Adv Nurs.2004;48(5):443-453.

 

Talking to People About Cancer and Treatment

Vos MS, Putter H, van Houwelingen HC, de Haes HC. Denial and social and emotional outcomes in lung cancer patients: the protective effect of denial. Lung Cancer. 2011 Apr;72(1):119-124. Epub 2010 Aug 11.

Lebel S, Castonguay M, Mackness G, Irish J, Bezjak A, Devins GM. The psychosocial impact of stigma in people with head and neck or lung cancer. Psycho-Oncology. 2011 Sep 19.

Kroenke CH,Quesenberry C,Kwan ML, et al. Social networks, social support, and burden in relationships, and mortality after breast cancerdiagnosis in the Life After BreastCancerEpidemiology (LACE) Study. BreastCancerRes Treat.2012 Nov 10.

Yang HK, Shin DW, Park JH, Kim SY, Eom CS, Kam S, Choi JH, Cho BL, Seo HG. The Association Between Perceived Social Support and Continued Smoking in Cancer Survivors. Jpn J Clin Oncol. 2012 Nov 19.

Manne S, Badr H. Intimacy processes and psychological distress among couples coping with head and neck or lung cancers. Psycho-Oncology.2010 September;19(9):941-954.

Galway K, Black A, Cantwell M, et al. Psychosocial interventions to improve quality of life and emotional wellbeing for recently diagnosedcancerpatients. Cochrane Database Syst Rev.2012 Nov 14;11:CD007064.

Chaitchik S, Kreitler S, Rapoport Y, Algor R. What do cancer patients’ spouses know about the patients? Cancer Nurs. 1992 Oct;15(5):353-362.

Depression (PDQ): Health professional version. National Cancer Institute – PDQ Cancer Information Summaries. http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0032529/.

Kroenke CH,Quesenberry C,Kwan ML, et al. Social networks, social support, and burden in relationships, and mortality after breast cancerdiagnosis in the Life After BreastCancerEpidemiology (LACE) Study. BreastCancerRes Treat.2012 Nov 10.

When someone you love has advanced cancer. National Cancer Institute. http://www.cancer.gov/cancertopics/coping/when-someone-you-love-has-advanced-cancer/page1/AllPages – f5.

Social and work relationships. Facing Forward: Life After Cancer Treatment. National Cancer Institute. http://www.cancer.gov/cancertopics/coping/life-after-treatment/page7#f2.

Caregivers for cancer patients and survivors. Cancer Prevention and Control. Centers for Disease Control and Prevention. http://www.cdc.gov/cancer/survivorship/caregivers/.

Disability discrimination. U.S. Equal Opportunity Commission – Laws, Regulation & Guidance. http://www.eeoc.gov/laws/types/disability.cfm.

Questions and answers about cancer in the workplace and the Americans with Disabilities Act (ADA). U.S. Equal Opportunity Commission. http://www.eeoc.gov/facts/cancer.html.

WelchAS,Wadsworth ME,Compas BE.Adjustment of children and adolescents to parentalcancer.Parents’ and children’s perspectives. Cancer. 1996 Apr 1;77(7):1409-1418.

Osborn T. The psychosocial impact of parental cancer on children and adolescents: a systematic review.Psycho-Oncology.2007;16(2):101-126.

Moore CW, Rauch PK. Addressing the needs of children when a parent has cancer. In: Holland JC, editor.Psycho-Oncology.Oxford; Oxford University Press; 2010;2:527-531.

Thastum M, Watson M, Kienbacher C, et al. Prevalence and predictors of emotional and behavioural functioning of children where a parent has cancer: a multinational study.Cancer.2009;115(17):4030-4039.

Rosenheim E,Reicher R. Informing children about a parent’s terminal illness. J Child Psychol Psychiatry.1985 Nov;26(6):995-998.

Family matters. Taking Time: Support for People with Cancer. National Cancer Institute. http://www.cancer.gov/cancertopics/takingtime/page3#B4.

Rosenheim E,Reicher R. Informing children about a parent’s terminal illness. J Child Psychol Psychiatry.1985 Nov;26(6):995-998.

Talking with your child about cancer. National Cancer Institute. 1986 Jan. http://www.eric.ed.gov/ERICWebPortal/contentdelivery/servlet/ERICServlet?accno=ED273867.

Tips for talking with children of different ages. National Cancer Institute. 2012 Jan 1. http://www.cancer.gov/cancertopics/coping/when-someone-you-love-is-treated/page6 – d4.

Welch AS, Wadsworth ME, Compas BE. Adjustment of children and adolescents to parental cancer. Cancer.1996;77:1409-1418.

Kroll L, Barnes J, Jones A, Stein A. Cancer in parents: telling children. BMJ.1998 March 21;316(7135):880.

Huizinga GA, van der Graaf WT, Visser A, Dijkstra JS, Hoekstra-Weebers JE. Psychosocial consequences for children of a parent with cancer: a pilot study.Cancer Nurs. 2003 Jun;26(3):195-202.

Droit-Volet S. Time perception in children: A neurodevelopmental approach. Neuropsychologia. 2012 Sep 20. doi:pii: S0028-3932(12)00395-8.

When someone you love is being treated for cancer: talking with family and friends. National Cancer Institute. http://www.cancer.gov/cancertopics/coping/when-someone-you-love-is-treated/page6. 2012 Jan.

When your parent has cancer: a guide for teens. National Cancer Institute. Publication No. 12-5734. 2012 Feb. http://www.cancer.gov/cancertopics/coping/When-Your-Parent-Has-Cancer.pdf.

Sieh DS, Dikkers AL, Visser-Meily JM, Meijer AM. Stress in adolescents with a chronically ill parent: inspiration from Rolland’s Family Systems-Illness Model. J Dev Phys Disabil. 2012 Dec;24(6):591-606.

Talking with family and friends. When Someone You Love Has Advanced Cancer. National Cancer Institute. 2012 Jan 10. http://www.cancer.gov/cancertopics/coping/when-someone-you-love-has-advanced-cancer/page7#f3.

Discussing death with children. MedlinePlus. http://www.nlm.nih.gov/medlineplus/ency/article/001909.htm.

Fact sheet: saying goodbye. PubMed Health. U.S. National Library of Medicine. http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0041065/. 2012 Feb.

When your parent has cancer: a guide for teens. National Cancer Institute. Publication No. 12-5734. 2012 Feb. http://www.cancer.gov/cancertopics/coping/When-Your-Parent-Has-Cancer.pdf.

What is cancer? National Cancer Institute. http://www.cancer.gov/cancertopics/cancerlibrary/what-is-cancer.

Cancer treatment. National Cancer Institute. http://www.cancer.gov/cancertopics/treatment.

What you need to know about cancer: risk factors. National Cancer Institute. 2006 Oct 4. http://www.cancer.gov/cancertopics/wyntk/cancer/page3.

Radiation therapy side effects. National Cancer Institute. http://www.cancer.gov/cancertopics/coping/radiation-therapy-and-you/page6.

Chemotherapy side effects sheets. National Cancer Institute. http://www.cancer.gov/cancertopics/coping/chemo-side-effects.

Radiation therapy for cancer. National Cancer Institute. http://www.cancer.gov/cancertopics/factsheet/Therapy/radiation.

Understanding the Cancer Journey

Northouse L, Williams AL, Given B, McCorkle R. Psychosocial care for family caregivers of patients with cancer. J Clin Oncol. 2012 Apr 10;30(11):1227-34.

Northouse LL, Mood DW, Schafenacker A, et al. Randomized clinical trial of a family intervention for prostate cancer patients and their spouses. Cancer. 2007 Dec 5;110(12):2809-18.

O’Mara A. Who’s taking care of the caregiver? J Clin Oncol. 2005 Oct 1;23(28):6820-1.

Vogelzang NJ, Breitbart W, Cella D, et al. Patient, caregiver, and oncologist perceptions of cancer-related fatigue: results of a tripart assessment survey. The Fatigue Coalition. Semin Hematol. 1997 Jul;34(3 Suppl 2):4-12.

Smets EM, Garssen B, Schuster-Uitterhoeve AL, de Haes JC. Fatigue in cancer patients. Br J Cancer. 1993 Aug;68(2):220-4.

Henry DH, Viswanathan HN, Elkin EP, Traina S, Wade S, Cella D. Symptoms and treatment burden associated with cancer treatment: results from a cross-sectional national survey in the U.S. Support Care Cancer.2008 Jul;16(7):791-801.

Hofman M, Ryan JL, Figueroa-Moseley CD, Jean-Pierre P, Morrow GR. Cancer-related fatigue: the scale of the problem. Oncologist. 2007;12 Suppl 1:4-10.

Grov EK, Dahl AA, Moum T, Fosså SD. Anxiety, depression, and quality of life in caregivers of patients with cancer in late palliative phase. Ann Oncol. 2005 Jul;16(7):1185-91.

Nijboer C, Tempelaar R, Triemstra M, van den Bos GA, Sanderman R. The role of social and psychologic resources in caregiving of cancer patients. Cancer. 2001 Mar 1;91(5):1029-39.

 

Preparing for the Cancer Journey

Chen H-C, Evans KFK, Salgado CJ, Mardini S. Methods of voice reconstruction. Seminars in Plastic Surgery. 2010;227-232.

Doyle C,Kushi LH,Byers T, et al;2006 Nutrition, Physical Activity and Cancer Survivorship Advisory Committee; American Cancer Society.Nutrition and physical activity during and after cancer treatment: an American Cancer Society guide for informed choices. CA Cancer J Clin.2006;56:323-353.

Katz MR, Kopek N, Waldron J, Devins GM, Tomlinson G. Screening for depression in head and neck cancer. Psychooncology. 2004;Apr13(4):269-80.

Terrell JE, Fisher SG, Wolf GT. Long-term quality of life after treatment of laryngeal cancer. The Veterans Affairs Laryngeal Cancer Study Group. Arch Otolaryngol Head Neck Surg. 1998 Sep;124(9):964-71.

Logemann JA, Pauloski BR, Rademaker AW, et al. Swallowing disorders in the first year after radiation and chemoradiation. Head Neck. 2008 Feb;30(2):148-58.

Gaziano JE. Evaluation and management of oropharyngeal Dysphagia in head and neck cancer. Cancer Control. 2002 Sep-Oct;9(5):400-9.

Ziebland S, Chapple A, Dumelow C, Evans J, Prinjha S, Rozmovits L. How the internet affects patients’ experience of cancer: a qualitative study. BMJ. 2004 Mar 6;328(7439):564.

Meier A, Lyons EJ, Frydman G, Forlenza M, Rimer BK. How cancer survivors provide support on cancer-related Internet mailing lists. J Med Internet Res. 2007 May 14;9(2):e12.

Janda M, Steginga S, Langbecker D, Dunn J, Walker D, Eakin E. Quality of life among patients with a brain tumor and their carers. J Psychosom Res. 2007;63:617-623.

Badger T, Segrin C, Dorros SM, Meek P, Lopez AM. Depression and anxiety in women with breast cancer and their partners. Nurs Res. 2007 Jan-Feb;56(1):44-53.

Northouse LL, Mood DW, Schafenacker A, et al. Randomized clinical trial of a family intervention for prostate cancer patients and their spouses. Cancer. 2007 Dec 15;110(12):2809-18.

National Cancer Institute (NCI) Website. Accessed at http://www.cancer.gov/ on February 19, 2013.

 

Diagnosis

Shah JP, Lydiatt W. Treatment of cancer of the head and neck. CA Cancer J Clin. 1995;45:352-368.

Edge SB, et al. The AJCC Cancer Staging Manual – Seventh Edition. American Joint Committee on Cancer 2010. Page 611.

Marur S, Forastiere AA. Head and neck cancer: changing epidemiology, diagnosis, and treatment. Mayo Clin Proc. 2008 Apr;83(4):489-501.

Surveillance Epidemiology and End Results (SEER) Website. Accessed at seer.cancer.gov on February 17, 2013.

Howlader N, Noone AM, Krapcho M, et al. SEER Cancer Statistics Review, 1975-2009 (Vintage 2009 Populations), National Cancer Institute. Bethesda, MD, Accessed at http://seer.cancer.gov/csr/1975_2009_pops09/, based on November 2011 SEER data submission, posted to the SEER web site, 2012.

Hillner BE, Smith TJ, Desch CE. Hospital and physician volume or specialization and outcomes in cancer treatment: importance in quality of cancer care. J Clin Oncol. 2000 Jun;18(11):2327-40.

 

Choosing a Cancer Care Team

Gaziano JE. Evaluation and management of oropharyngeal Dysphagia in head and neck cancer. Cancer Control. 2002 Sep-Oct;9(5):400-9.

Chen H-C, Evans KFK, Salgado CJ, Mardini S. Methods of voice reconstruction. Seminars in Plastic Surgery. 2010:227-232.

National Cancer Institute Website. Accessed at http://www.cancer.gov/dictionary on February 18, 2013.

Marur S, Forastiere AA. Head and neck cancer: changing epidemiology, diagnosis, and treatment. Mayo Clin Proc. 2008 Apr;83(4):489-501.

Ko CY, Chang JT, Chaudhry S, Kominski G. Are high-volume surgeons and hospitals the most important predictors of in-hospital outcome for colon cancer resection? Surgery. 2002 Aug;132(2):268-73.

Karanicolas PJ, Dubois L, Colquhoun PH, Swallow CJ, Walter SD, Guyatt GH. The more the better?: the impact of surgeon and hospital volume on in-hospital mortality following colorectal resection. Ann Surg. 2009 Jun;249(6):954-9.

Billingsley KG, Morris AM, Dominitz JA, et al. Surgeon and hospital characteristics as predictors of major adverse outcomes following colon cancer surgery: understanding the volume-outcome relationship. Arch Surg. 2007 Jan;142(1):23-31; discussion 32.

Hillner BE, Smith TJ, Desch CE. Hospital and physician volume or specialization and outcomes in cancer treatment: importance in quality of cancer care. J Clin Oncol. 2000 Jun;18(11):2327-40.

Friese CR, Earle CC, Silber JH, Aiken LH. Hospital characteristics, clinical severity, and outcomes for surgical oncology patients. Surgery. 2010 May;147(5):602-9.

National Cancer Institute Website. Accessed at http://www.cancer.gov/ on February 19, 2013.

Chaturvedi SK, Shenoy A, Prasad KM, Senthilnathan SM, Premlatha BS. Concerns, coping and quality of life in head and neck cancer patients. Support Care Cancer.1996 May;4(3):186-90.

Hoffman B. Cancer survivors at work: a generation of progress. CA Cancer J Clin. 2005 Sep-Oct;55(5):271-80.

 

Understanding the Treatment Plan

Northouse L, Williams AL, Given B, McCorkle R. Psychosocial care for family caregivers of patients with cancer. J Clin Oncol. 2012 Apr 10;30(11):1227-34.

Grunfeld E, Coyle D, Whelan T, et al. Family caregiver burden: results of a longitudinal study of breast cancer patients and their principal caregivers. CMAJ. 2004 Jun 8;170(12):1795-801.

Nijboer C, Tempelaar R, Triemstra M, van den Bos GA, Sanderman R. The role of social and psychologic resources in caregiving of cancer patients. Cancer. 2001 Mar 1;91(5):1029-39.

Cameron JI, Franche RL, Cheung AM, Stewart DE. Lifestyle interference and emotional distress in family caregivers of advanced cancer patients. Cancer. 2002 Jan 15;94(2):521-7.

Northouse LL, Mood DW, Schafenacker A, et al. Randomized clinical trial of a family intervention for prostate cancer patients and their spouses. Cancer. 2007 Dec 15;110(12):2809-18.

Badger T, Segrin C, Dorros SM, Meek P, Lopez AM. Depression and anxiety in women with breast cancer and their partners. Nurs Res. 2007 Jan-Feb;56(1):44-53.

Smets EM, Garssen B, Schuster-Uitterhoeve AL, de Haes JC. Fatigue in cancer patients. Br J Cancer. 1993 Aug;68(2):220-4.

Vogelzang NJ, Breitbart W, Cella D, et al. Patient, caregiver, and oncologist perceptions of cancer-related fatigue: results of a tripart assessment survey. The Fatigue Coalition. Semin Hematol. 1997 Jul;34(3 Suppl 2):4-12.

Henry DH, Viswanathan HN, Elkin EP, Traina S, Wade S, Cella D. Symptoms and treatment burden associated with cancer treatment: results from a cross-sectional national survey in the U.S. Support Care Cancer.2008 Jul;16(7):791-801.

Hofman M, Ryan JL, Figueroa-Moseley CD, Jean-Pierre P, Morrow GR. Cancer-related fatigue: the scale of the problem. Oncologist. 2007;12 Suppl 1:4-10.

Dimeo F, Rumberger BG, Keul J. Aerobic exercise as therapy for cancer fatigue. Med Sci Sports Exerc. 1998 Apr;30(4):475-8.

Dimeo F, Schwartz S, Wesel N, Voigt A, Theil E.Effects of an endurance and resistance exercise program on persistent cancer-related fatigue after treatment. Ann Oncol. 2008;19(8):1495-1499.

Curt GA. Like pain, this is a symptom that physicians can and should manage. BMJ. 2001;322:1560.

Rock CL, Doyle C, Demark-Wahnefried W, et al. Nutrition and physical activity guidelines for cancer survivors. CA Cancer J Clin. 2012 Jul-Aug;62(4):243-74.

Shah JP, Lydiatt W. Treatment of cancer of the head and neck. CA Cancer J Clin. 1995;45:352-368.

Yu P. Characteristics of the anterolateral thigh flap in a Western population and its application in head and neck reconstruction. Head Neck. 2004 Sep;26(9):759-69.

Gaziano JE. Evaluation and management of oropharyngeal Dysphagia in head and neck cancer. Cancer Control. 2002 Sep-Oct;9(5):400-9.

Lichter AS, Lawrence TS. Recent advances in radiation oncology. N Engl J Med. 1995;332(6):371-9.

Vissink A, Burlage FR, Spjkervet FKL, Jansma J, Coppes RP. Prevention and treatment of the consequences of head and neck radiotherapy. Crit Rev Oral Biol Med. 2003;14(3):213-225.

Argiris A, Karamouzis MV, Raben D, Ferris RL. Head and neck cancer. Lancet. 2008;371:1695-1709.

Forastiere A, Koch W, Trotti A, Sidransky D. Head and Neck Cancer. N Engl J Med. 2001;345(26):1890-1900.

Wendt TG, Grabenbauer GG, Rödel CM, et al. Simultaneous radiochemotherapy versus radiotherapy alone in advanced head and neck cancer: a randomized multicenter study. J Clin Oncol. 1998 Apr;16(4):1318-24.

Doyle C,Kushi LH,Byers T, et al.2006 Nutrition, Physical Activity and Cancer Survivorship Advisory Committee; American Cancer Society.Nutrition and physical activity during and after cancer treatment: an American Cancer Society guide for informed choices. CA Cancer J Clin.2006;56:323-353.

Horiot JC, Schraub S, Bone MC, et al. Dental preservation in patients irradiated for head and neck tumours: A 10-year experience with topical fluoride and a randomized trial between two fluoridation methods. Radiother Oncol. 1983 Aug;1(1):77-82.

Zlotolow IM. Clinical manifestations of head and neck irradiation. Compend Contin Educ Dent. 1997;18(2 Spec No):51-6.

Logemann JA, Pauloski BR, Rademaker AW, et al. Swallowing disorders in the first year after radiation and chemoradiation. Head Neck. 2008 Feb;30(2):148-58.

Rosenthal DI, Lewin JS, Eisbruch A. Prevention and treatment of dysphagia and aspiration after chemoradiation for head and neck cancer. J Clin Oncol. 2006 Jun 10;24(17):2636-43.

Kulbersh BD, Rosenthal EL, McGrew BM, et al. Pretreatment, preoperative swallowing exercises may improve dysphagia quality of life. Laryngoscope. 2006 Jun;116(6):883-6.

Carroll WR, Locher JL, Canon CL, Bohannon IA, McColloch NL, Magnuson JS. Pretreatment swallowing exercises improve swallow function after chemoradiation. Laryngoscope. 2008 Jan;118(1):39-43.

Terrell JE, Fisher SG, Wolf GT. Long-term quality of life after treatment of laryngeal cancer. The Veterans Affairs Laryngeal Cancer Study Group. Arch Otolaryngol Head Neck Surg. 1998 Sep;124(9):964-71.

Ashbury FD, Cameron C, Mercer SL, Fitch M, Nielsen E. One-on-one peer support and quality of life for breast cancer patients. Patient Educ Couns. 1998 Oct;35(2):89-100.

Minton O, Richardson A, Sharpe M, Hotopf M, Stone P. A systematic review and meta-analysis of the pharmacological treatment of cancer-related fatigue. J Natl Cancer Inst. 2008 Aug 20;100(16):1155-66.

 

Life During Treatment

Logemann JA, Pauloski BR, Rademaker AW, Colangelo LA. Speech and swallowing rehabilitation for head and neck cancer patients. Oncology-Huntington. 1997 May 1;11(5):651-8.

Curt GA. Like pain, this is a symptom that physicians can and should manage. BMJ. 2001;322:1560.

Pearson SE, Meyer AC, Adams GL, Ondrey FG. Decreased hearing after combined modality therapy for head and neck cancer. Am J Otolaryngol. 2006 Mar-Apr;27(2):76-80.

Smets EM, Garssen B, Schuster-Uitterhoeve AL, de Haes JC. Fatigue in cancer patients. Br J Cancer. 1993 Aug;68(2):220-4.

Vogelzang NJ, Breitbart W, Cella D, et al. Patient, caregiver, and oncologist perceptions of cancer-related fatigue: results of a tripart assessment survey. The Fatigue Coalition. Semin Hematol. 1997 Jul;34(3 Suppl 2):4-12.

Henry DH, Viswanathan HN, Elkin EP, Traina S, Wade S, Cella D. Symptoms and treatment burden associated with cancer treatment: results from a cross-sectional national survey in the U.S. Support Care Cancer.2008 Jul;16(7):791-801.

Hofman M, Ryan JL, Figueroa-Moseley CD, Jean-Pierre P, Morrow GR. Cancer-related fatigue: the scale of the problem. Oncologist. 2007;12 Suppl 1:4-10.

Rogers LQ, Courneya KS, Robbins KT, et al. Physical activity and quality of life in head and neck cancer survivors. Support Care Cancer. 2006 Oct;14(10):1012-9.

Dimeo F, Rumberger BG, Keul J. Aerobic exercise as therapy for cancer fatigue. Med Sci Sports Exerc. 1998 Apr;30(4):475-8.

Dimeo F, Schwartz S, Wesel N, Voigt A, Theil E.Effects of an endurance and resistance exercise program on persistent cancer-related fatigue after treatment. Ann Oncol. 2008;19(8):1495-1499.

Rock CL, Doyle C, Demark-Wahnefried W, et al. Nutrition and physical activity guidelines for cancer survivors. CA Cancer J Clin. 2012 Jul-Aug;62(4):243-74.

Minton O, Richardson A, Sharpe M, Hotopf M, Stone P. A systematic review and meta-analysis of the pharmacological treatment of cancer-related fatigue. J Natl Cancer Inst. 2008 Aug 20;100(16):1155-66.

Morrow GR, Gillies LJ, Hickok JT, et al. The positive effect of the psychostimulant modafinil on fatigue from cancer that persists after treatment is completed [abstract]. J Clin Oncol 2005;23(Suppl 16):8012.

Logemann JA, Pauloski BR, Rademaker AW, et al. Swallowing disorders in the first year after radiation and chemoradiation. Head Neck. 2008 Feb;30(2):148-58.

Doyle C,Kushi LH,Byers T, et al.2006 Nutrition, Physical Activity and Cancer Survivorship Advisory Committee; American Cancer Society.Nutrition and physical activity during and after cancer treatment: an American Cancer Society guide for informed choices. CA Cancer J Clin.2006;56:323-353

Ogama N, Suzuki S. Adverse effects and appetite suppression associated with particle beam therapy in patients with head and neck cancer. Jpn J Nurs Sci. 2012 Jun;9(1):28-37.

Grunfeld E, Coyle D, Whelan T, et a. Family caregiver burden: results of a longitudinal study of breast cancer patients and their principal caregivers. CMAJ. 2004 Jun 8;170(12):1795-801.

Hoffman B. Cancer survivors at work: a generation of progress. CA Cancer J Clin. 2005 Sep-Oct;55(5):271-80.

Blank, PD. The economics of the employment provisions of The Americans with Disabilities Act: Part I — workplace accommodations. DePaul Law Rev. 1997;46(4):877-914.Life After Treatment

Hoffman B. Cancer survivors at work: a generation of progress. CA Cancer J Clin. 2005 Sep-Oct;55(5):271-80.

Logemann JA, Pauloski BR, Rademaker AW, et al. Swallowing disorders in the first year after radiation and chemoradiation. Head Neck. 2008 Feb;30(2):148-58.

Pauloski BR. Rehabilitation of dysphagia following head and neck cancer. Phys Med Rehabil Clin N Am. 2008 Nov;19(4):889-928.

Kulbersh BD, Rosenthal EL, McGrew BM, et al. Pretreatment, preoperative swallowing exercises may improve dysphagia quality of life. Laryngoscope. 2006 Jun;116(6):883-6.

Carroll WR, Locher JL, Canon CL, Bohannon IA, McColloch NL, Magnuson JS. Pretreatment swallowing exercises improve swallow function after chemoradiation. Laryngoscope. 2008 Jan;118(1):39-43.

Argiris A, Karamouzis MV, Raben D, Ferris RL. Head and neck cancer. Lancet 2008; 371:1695-1709.

Epstein JB, Emerton S, Kolbinson DA, et al. Quality of life and oral function following radiotherapy for head and neck cancer. Head Neck. 1999 Jan;21(1):1-11.

Gaziano JE. Evaluation and management of oropharyngeal Dysphagia in head and neck cancer. Cancer Control. 2002 Sep-Oct;9(5):400-9.

Gritz ER, Carmack CL, de Moor C, et al. First year after head and neck cancer: quality of life. J Clin Oncol.1999 Jan;17(1):352-60.

Chen H-C, Evans KFK, Salgado CJ, Mardini S. Methods of voice reconstruction. Seminars in Plastic Surgery. 2010:227-232.

Alexander MV, Zajtchuk JT, Henderson RL. Hypothyroidism and wound healing: occurrence after head and neck radiation and surgery. Arch Otolaryngol. 1982 May;108(5):289-91.

American Cancer Society (ACS). Cancer Facts and Figures 2012. Atlanta, GA: American Cancer Society, Inc. 2012.

 

Navigating Your Finances

Hoffman B. Cancer survivors at work: a generation of progress. CA Cancer J Clin. 2005 Sep-Oct;55(5):271-80.

Chaturvedi SK, Shenoy A, Prasad KM, Senthilnathan SM, Premlatha BS. Concerns, coping and quality of life in head and neck cancer patients. Support Care Cancer. 1996 May;4(3):186-90.

Ward E, Halpern M, Schrag N, et al. Association of insurance with cancer care utilization and outcomes. CA Cancer J Clin. 2008 Jan-Feb;58(1):9-31.

Kim P. Cost of cancer care: the patient perspective. J Clin Oncol. 2007 Jan 10;25(2):228-32.

National Cancer Institute Website. Accessed at http://www.cancer.gov/ on February 19, 2013.

Benefits.gov website. Accessed at http://www.benefits.gov/benefits/browse-by-category/category/MED on February 19, 2013.

You as a Caregiver

Vogelzang NJ, Breitbart W, Cella D, et al. Patient, caregiver, and oncologist perceptions of cancer-related fatigue: results of a tripart assessment survey. The Fatigue Coalition. Semin Hematol. 1997 Jul;34(3 Suppl 2):4-12.

Henry DH, Viswanathan HN, Elkin EP, Traina S, Wade S, Cella D. Symptoms and treatment burden associated with cancer treatment: results from a cross-sectional national survey in the U.S. Support Care Cancer.2008 Jul;16(7):791-801.

Grunfeld E, Coyle D, Whelan T, et al. Family caregiver burden: results of a longitudinal study of breast cancer patients and their principal caregivers. CMAJ. 2004 Jun 8;170(12):1795-801.

Janda M, Steginga S, Langbecker D, Dunn J, Walker D, Eakin E. Quality of life among patients with a brain tumor and their carers. J Psychosom Res. 2007 Dec;63(6):617-23.

Drabe N, Zwahlen D, Büchi S, Moergeli H, Zwahlen RA, Jenewein J. Psychiatric morbidity and quality of life in wives of men with long-term head and neck cancer. Psychooncology. 2008 Feb;17(2):199-204.

Braun M, Mikulincer M, Rydall A, et al: Hidden morbidity in cancer: Spouse caregivers. J Clin Oncol. 25:4829-4834, 2007

Nijboer C, Tempelaar R, Triemstra M, van den Bos GA, Sanderman R. The role of social and psychologic resources in caregiving of cancer patients. Cancer. 2001 Mar 1;91(5):1029-39.

Cameron JI, Franche RL, Cheung AM, Stewart DE. Lifestyle interference and emotional distress in family caregivers of advanced cancer patients. Cancer. 2002 Jan 15;94(2):521-7.

Bjordal K, Kaasa S. Psychological distress in head and neck cancer patients 7-11 years after curative treatment. Br J Cancer. 1995 Mar;71(3):592-7.

Verdonck-de Leeuw IM, Eerenstein SE, Van der Linden MH, Kuik DJ, de Bree R, Leemans CR. Distress in spouses and patients after treatment for head and neck cancer. Laryngoscope. 2007 Feb;117(2):238-41.

Northouse LL, Mood DW, Schafenacker A, et al. Randomized clinical trial of a family intervention for prostate cancer patients and their spouses. Cancer. 2007 Dec 15;110(12):2809-18.

Nijboer C, Triemstra M, Tempelaar R, Sanderman R, van den Bos GA. Determinants of caregiving experiences and mental health of partners of cancer patients. Cancer. 1999 Aug 15;86(4):577-88.

Badger T, Segrin C, Dorros SM, Meek P, Lopez AM. Depression and anxiety in women with breast cancer and their partners. Nurs Res. 2007 Jan-Feb;56(1):44-53.

Kugaya A, Akechi T, Okuyama T, et al. Prevalence, predictive factors, and screening for psychologic distress in patients with newly diagnosed head and neck cancer. Cancer. 2000 Jun 15;88(12):2817-23.

American Cancer Society (ACS). Cancer Facts and Figures 2012. Atlanta, GA: American Cancer Society, Inc. 2012.

Breitbart W, Holland J. Psychosocial aspects of head and neck cancer. Semin Oncol. 1988 Feb;15(1):61-9.

Northouse L, Williams AL, Given B, McCorkle R. Psychosocial care for family caregivers of patients with cancer. J Clin Oncol. 2012 Apr 10;30(11):1227-34.

Scott JL, Halford WK, Ward BG. United we stand? The effects of a couple-coping intervention on adjustment to early stage breast or gynecological cancer. J Consult Clin Psychol. 2004;72(6):1122-1135.

Meier A, Lyons EJ, Frydman G, Forlenza M, Rimer BK. How cancer survivors provide support on cancer-related Internet mailing lists. J Med Internet Res. 2007 May 14;9(2):e12.Katz MR, Kopek N, Waldron J, Devins GM, Tomlinson G. Screening for depression in head and neck cancer. Psychooncology. 2004 Apr;13(4):269-80.

Ashbury FD, Cameron C, Mercer SL, Fitch M, Nielsen E. One-on-one peer support and quality of life for breast cancer patients. Patient Educ Couns. 1998 Oct;35(2):89-100.

Gaziano JE. Evaluation and management of oropharyngeal Dysphagia in head and neck cancer. Cancer Control. 2002 Sep-Oct;9(5):400-9.

Ziebland S, Chapple A, Dumelow C, Evans J, Prinjha S, Rozmovits L. How the internet affects patients’ experience of cancer: a qualitative study. BMJ. 2004 Mar 6;328(7439):564.

 

The Path to Remission

National Cancer Institute (NCI) Website. Accessed at http://www.cancer.gov/ on February 19, 2013.

Argiris A, Karamouzis MV, Raben D, Ferris RL. Head and neck cancer. Lancet. 2008;371:1695-1709.

Macdonald N, Shapiro A, Bender C, Paolantonio M, Coombs J. Experiences and perspectives on the GIST patient journey. Patient Prefer Adherence. 2012;6:253-62.

Alexander MV, Zajtchuk JT, Henderson RL. Hypothyroidism and wound healing: occurrence after head and neck radiation and surgery. Arch Otolaryngol. 1982 May;108(5):289-91.

 

Recurrence

When cancer comes back: cancer recurrence. American Cancer Society web site. Available at http://www.cancer.org/treatment/survivorshipduringandaftertreatment/understandingrecurrence/whenyourcancercomesback/when-cancer-comes-back-common-questions-about-recurrence, Accessed May 1, 2012.

Marur S, Forastiere AA. Head and neck cancer: changing epidemiology, diagnosis, and treatment. Mayo Clin Proc. 2008;83(4):489-501.

Campbell BH, Marbella A, Layde PM. Quality of life and recurrence concern in survivors of head and neck cancer. Laryngoscope. 2000;110(6):895-906.

Abgral R, Querellou S, Potard G, et al. Does 18F-FDG PET/CT improve the detection of posttreatment recurrence of head and neck squamous cell carcinoma in patients negative for disease on clinical follow-up? J Nucl Med. 2009;50(1):24-9.

Lowe VJ, Boyd JH, Dunphy FR, et al. Surveillance for recurrent head and neck cancer using positron emission tomography. J Clin Oncol. 2000;18(3):651-8.

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Henningfield JE. Nicotine medications for smoking cessation. N Engl J Med. 1995;333(18):1196-203.

Hughes JR, Stead LF, Lancaster T. Antidepressants for smoking cessation. Cochrane Database Syst Rev. 2007;(1):CD000031.

Vermorken JB, Specenier P. Optimal treatment for recurrent/metastatic head and neck cancer. Ann Oncol. 2010;21 Suppl 7:vii252-61.

Clinicaltrials.gov website. Accessed at clinicaltrials.gov on January 10, 2013.

 

Life After Cancer

Meier A, Lyons EJ, Frydman G, Forlenza M, Rimer BK. How cancer survivors provide support on cancer-related Internet mailing lists. J Med Internet Res. 2007 May 14;9(2):e12.

Ziebland S, Chapple A, Dumelow C, Evans J, Prinjha S, Rozmovits L. How the internet affects patients’ experience of cancer: a qualitative study. BMJ. 2004 Mar 6;328(7439):564.

 

End of Life

Northouse L, Williams AL, Given B, McCorkle R. Psychosocial care for family caregivers of patients with cancer. J Clin Oncol. 2012 Apr 10;30(11):1227-34.

Earle CC, Park ER, Lai B, Weeks JC, Ayanian JZ, Block S. Identifying potential indicators of the quality of end-of-life cancer care from administrative data. J Clin Oncol. 2003 Mar 15;21(6):1133-8.

Grunfeld E, Coyle D, Whelan T, et al. Family caregiver burden: results of a longitudinal study of breast cancer patients and their principal caregivers. CMAJ. 2004 Jun 8;170(12):1795-801.

Northouse LL, Mood DW, Schafenacker A, et al. Randomized clinical trial of a brief and extensive dyadic intervention for advanced cancer patients and their family caregivers. Psychooncology. 2013 Mar;22(3):555-63.

Badger T, Segrin C, Dorros SM, Meek P, Lopez AM. Depression and anxiety in women with breast cancer and their partners. Nurs Res. 2007 Jan-Feb;56(1):44-53.

Hoffman B. Cancer survivors at work: a generation of progress. CA Cancer J Clin. 2005 Sep-Oct;55(5):271-80.

Howlader N, Noone AM, Krapcho M, et al. SEER Cancer Statistics Review, 1975-2009 (Vintage 2009 Populations), National Cancer Institute. Bethesda, MD,Accessed at http://seer.cancer.gov/csr/1975_2009_pops09/, based on November 2011 SEER data submission, posted to the SEER web site, 2012.

Lockhart LK, Ditto PH, Danks JH, Coppola KM, Smucker WD. The stability of older adults’ judgments of fates better and worse than death. Death Stud. 2001 Jun;25(4):299-317.

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Torpy JM, Burke A, Golub RM. Hospice care. JAMA. 2012 Jul 11;308(2):200.

Current Clinical Issues: The Debate in Hospice Care. JOP. 2008;4(3):153-157.

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Important: Privacy Update

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Please click below to see an updated privacy policy that describes how we collect and use your personal information and respect your privacy.

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