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Cancer Journey Resources

12375974A resource that you may want to identify at the beginning of your cancer journey is a support group. The members of the support group can often provide you with strategies for navigating your cancer journey or provide you with recommendations about how to communicate your needs to health care professionals.11, Ziebland S, Chapple A, Dumelow C, Evans J, Prinjha S, Rozmovits L. How the internet affects patients' experience of cancer: a qualitative study. BMJ. 2004 Mar 6;328(7439):564.12 Meier A, Lyons EJ, Frydman G, Forlenza M, Rimer BK. How cancer survivors provide support on cancer-related Internet mailing lists. J Med Internet Res. 2007 May 14;9(2):e12.

Organizations that may be able to find support groups and/or provide counseling services are CancerCare and the American Cancer Society. Although it may be early in your disease course, you may also want to consider determining if there are National Cancer Institute (NCI)-designated centers near you.13 National Cancer Institute (NCI) Website. Accessed at http://www.cancer.gov/ on February 19, 2013. You can enter your location and find nearby facilities.

NCI-designated centers treat cancer with multidisciplinary teams that often have access to clinical trials, which may be useful if you have advanced head and neck cancer.13 National Cancer Institute (NCI) Website. Accessed at http://www.cancer.gov/ on February 19, 2013.

http://vimeo.com/67600818
I started going to a support group that met once a month, and they were terrific. They helped me so much at the beginning with things I was concerned about as far as keeping food down, sleeping techniques, things of that nature that were troubling me.Gordon O. (laryngeal cancer survivor)

References

1 Referenced with permission from The NCCN Clinical Practice Guidelines in Oncology (NCCN Guidelines®) for Head and Neck Cancers V.2.2014. © National Comprehensive Cancer Network, Inc 2014. All rights reserved. Accessed June 18, 2014. To view the most recent and complete version of the guideline, go online to www.NCCN.org. NATIONAL COMPREHENSIVE CANCER NETWORK®, NCCN®, NCCN GUIDELINES®, and all other NCCN Content are trademarks owned by the National Comprehensive Cancer Network, Inc.

2 Chen H-C, Evans KFK, Salgado CJ, Mardini S. Methods of voice reconstruction. Seminars in Plastic Surgery. 2010:227-232.

3 Gaziano JE. Evaluation and management of oropharyngeal Dysphagia in head and neck cancer. Cancer Control. 2002 Sep-Oct;9(5):400-9.

4 Doyle C,Kushi LH,Byers T, et al.2006 Nutrition, Physical Activity and Cancer Survivorship Advisory Committee; American Cancer Society.Nutrition and physical activity during and after cancer treatment: an American Cancer Society guide for informed choices. CA Cancer J Clin.2006;56:323-353.

5 Argiris A, Karamouzis MV, Raben D, Ferris RL. Head and neck cancer. Lancet. 2008; 371:1695-1709.

6 Horiot JC, Schraub S, Bone MC, Bet al. Dental preservation in patients irradiated for head and neck tumours: A 10-year experience with topical fluoride and a randomized trial between two fluoridation methods. Radiother Oncol. 1983 Aug;1(1):77-82.

7 Shah JP, Lydiatt W. Treatment of cancer of the head and neck. CA Cancer J Clin. 1995; 45: 352-368.

8 Zlotolow IM. Clinical manifestations of head and neck irradiation. Compend Contin Educ Dent. 1997;18(2 Spec No):51-6.

9 Katz MR, Kopek N, Waldron J, Devins GM, Tomlinson G. Screening for depression in head and neck cancer. Psycho-Oncology. 2004 Apr;13(4):269-80.

10 Terrell JE, Fisher SG, Wolf GT. Long-term quality of life after treatment of laryngeal cancer. The Veterans Affairs Laryngeal Cancer Study Group. Arch Otolaryngol Head Neck Surg. 1998 Sep;124(9):964-71.

11 Ziebland S, Chapple A, Dumelow C, Evans J, Prinjha S, Rozmovits L. How the internet affects patients' experience of cancer: a qualitative study. BMJ. 2004 Mar 6;328(7439):564.

12 Meier A, Lyons EJ, Frydman G, Forlenza M, Rimer BK. How cancer survivors provide support on cancer-related Internet mailing lists. J Med Internet Res. 2007 May 14;9(2):e12.

13 National Cancer Institute (NCI) Website. Accessed at http://www.cancer.gov/ on February 19, 2013.